Update...

Well today was okay so far. Devin is doing okay and hasn't had a relapse. We have him on a ton of medication now and the big test is going to be tonight. For some reason this always seems to really get bad in the middle of the night. So we will just have to wait and see what happens. Denise made mention the other day that we need to re-do the hospital grab bag for me instead of her because if something happens she won't be able to go. So I suppose I should pull something together for that just in case. Like I said yesterday Devin did an excellent job of keeping calm and did not start crying and stuff so though it was bad he was able to control it. It is incredibly frustrating watching your child for any change in color and trying to gauge when it is time to make the call. It is all the more difficult here since the hospital is 45 minutes away. I get really tired calling 911...